News & updates
Follow the latest updates from Alström Syndrome Australia, including research developments, fundraising milestones, awareness campaigns and community news.
We are committed to sharing progress transparently as the organisation grows and strengthens connections across Australia and the global rare disease community.
This section will provide updates on research momentum, advocacy efforts, collaborations
and future initiatives.
Public Launch
Tuesday 10 November 2026 | 5:30pm
Turbine Platform, Brisbane Powerhouse
Please join us as we officially launch Alström Syndrome Australia, bringing together families, clinicians, researchers, industry partners and supporters to connect, share and look towards the future.
We’ll share our vision for better care, research and support, and offer a first look at a new sensory arts experience being developed with Deafblind children at its centre.
Join us for drinks and canapés as we celebrate this exciting new chapter and the community and possibilities we hope to build around it.
This is an accessible, family-friendly event, with a Kids Table hosted by Suite Events offering creative activities and a quiet space for children and families. The launch will be Auslan interpreted, and Brisbane Powerhouse is wheelchair accessible. Please advise of any access requirements when booking.
Sensory arts workshop
Tuesday 10 November 2026 | 5:30pm
Turbine Platform, Brisbane Powerhouse
Children of all abilities and their families are invited to explore the many ways we experience and know summer beyond what we can see.
Through texture, sound, movement, play and sensory exploration, children will create their own memories of summer and help shape the work as it develops.
Places are limited. Bookings are essential.
